Endo Empowered - Revolutionizing the Healing of Endometriosis Logo

Empower yourself on reducing PAIN & SYPMTOMS naturally,

without more doctor's visits, painful surgeries, or life-disrupting hormone treatments.

20 Associated Symptoms of Endometriosis. Could You Have the Condition? Do You Suffer from These? Any I Haven’t Mentioned?

Here are some distinct associated symptoms of Endometriosis that many women share.  You may not have all of the symptoms, but if you have at least 7 of them, it is worth researching the topic further.

  1. Period Pain

Period pain is the most obvious symptom of Endometriosis. The pain will be severe on the first two days and will not go away with a pain killer or two. Your period pain will most likely be accompanied by digestive problems, emotional mood swings and irritability. Some women get such severe pain that they cannot walk or go to work. When the pain occurs every month, it is not normal. Women with Endometriosis often experience longer or heavier periods.  However, the latter is not always a definite indicator of Endometriosis, since some women who have Endometriosis experience very little bleeding.

  1. Digestive issues

When we first go to the doctor with “lower abdominal pain”, their first point of reference is likely to be our digestion. When they ask us the questions, “What is your digestion like? Do you have diarrhoea? Constipation? Cramping?”, we might reply, “Well, yes we do…. all of the above.”  The difficulty with diagnosis is that these digestive problems they are often interlinked with Endometriosis and other digestive issues. One of the ways to work out if the source of pain comes from Endometriosis or digestive issues is by looking at the hormone fluctuations. We have extreme diarrhoea or constipation just before or during our period. Our digestion is closely linked to our hormones, so these two are interlinked.  This article will help your digestion immediately.

  1. Lower Back Pain

This isn’t always a definite symptom but definitely worth a mention as many women suffer from lower back pain and don’t make the connection to Endometriosis. Endometriosis can develop in the lower area of the pelvic area and settle in the Pouch of Douglas. This area is situated very closely to the nerves on the lower back and can therefore cause lower back pain. This can lead to pain running down the legs and hip area.

  1. Feeling Emotional

PMS is one of the signs of Endometriosis but generally we have more severe PMS.  We experience extreme emotional ups and downs. It can be so extreme that it causes friends to leave, boyfriends to break up with us and all sorts of nasty results. We feel everything in extremes – extreme anger, extreme depression, extreme happiness. These emotions are not limited to the first week of our period. They can occur at any time, for no logical reason (until you make a note of them and notice the trends). I have written a few articles on PMS which you might find useful.

  1. Back ache and tension in the shoulders

The upper area of your back is likely to tense up and become stiff, especially around your period. There are a number of theories to explain these symptoms, but many believe it has to do with a lack of minerals which your body requires during your monthly cycle and  which are drawn from other parts of the body, such as Magnesium.

  1. Feeling cold often

This is based on a Traditional Chinese Theory that women who have Endometriosis have “caught the cold or damp” in their body. They believe by chasing out the cold from the body we can heal the Endometriosis. One of the symptoms I noticed was that I get cold easily and that my feet are often cold, even in summer. It is not a definite symptom, but it does show an imbalance in the body, which should get some attention. This can also be attributed to a close correlation with Thyroid imbalances in women with Endometriosis. 

  1. Nausea

I personally don’t experience much of this symptom anymore, but I remember when my Endometriosis was extremely bad, I would feel nauseous on the day of my period or a few days before. I would literally get sick to feel better. It was bad during the month too, especially when I was younger, in my teens. I would struggle to eat anything without feeling somewhat ill or queezy afterwards.

  1. The love of sugar

A strong dependence on sugar is a big symptom. I noticed this once I went off sugar and realised my addiction to it. I didn’t think I could live without sugar and when I did, I would get incredibly depressed. I felt  hollow as though something major had happened in my life. I was incredibly dependent. Women with Endometriosis often express this love of sugar. I think it has to do with wanting to boost our energy levels but it is often an emotional comfort food.

  1. Sore Breasts

Having sore breasts a few days before your period is due is also quite common with women who have Endometriosis. It can be so severe that you can’t stand the idea of walking anywhere.  Sore breasts are caused by water retention in the body. Cutting out coffee is one of the easiest remedies to get rid of sore breasts.

  1. Headaches, Migraines

Headaches are a sign from your body that is it not entirely happy with you. If you get them on a constant basis, this is a sign that you should listen to your body and change something! Both headaches and migraines are closely linked to hormone imbalances in the body.

  1. Feeling tired when you get up in the morning

You should feel rested when you get up, right? When you have Endometriosis, it is common to feel tired often and it is especially hard to get up in the mornings. This is because the body is still working through toxins in the liver.

  1. Other inflammations in the body

Endometriosis is an inflammatory condition. This means that the body is essentially in “repair mode”. The body will often display other inflammatory conditions in other areas of the body, such as an inflamed bladder, called Interstitial Cystitis. Other areas of inflammation can include your gums, your bowel and any organ that can become easily inflamed.

  1. Poor skin health

No matter what cleanser you buy or how hard you try, your skin is still breaking out! You try natural things, you try stronger things and yet somehow your skin is never perfectly clear. The skin is a natural toxin releaser of the body. Endometriosis is closely linked to toxins in the body. When our skin is unhealthy, it shows imbalances and toxins that are residing in the body. Please note: there are heaps of reasons why one can have poor skin, but it is common for women with Endometriosis to have poor skin.

  1. Puffy eyes or eye troubles

I never made the connection that gritty and sore eyes are related to Endometriosis until recently. It is only now that my condition is a lot better that I recognise this as a symptom. Puffy eyes are also a sign of toxins residing in the liver. They can be an indicator of gluten intolerance too. Our eyes are incredibly sensitive and show us so much about our state of health!

  1. Allergies

It is common for women who have Endometriosis to also suffer from allergies, including an itchy nose, sore or watery eyes and an itchy throat. This is yet another overreaction by the body to defend you. Women with Endometriosis generally have a lowered immune system, which is the same reason we get allergies.

  1. Pain during sex

This is one of the first symptoms I recognised as being related to Endometriosis as you can feel it instantly. It is a dull ache for me but for many women it can be quite severe and they can also experience it afterwards, in waves of cramping pain. There are ways to alleviate tenderness during sex. I have found these tips useful. 

  1. Bladder infections

It is common with Endometriosis sufferers to have an inflamed bladder and thereby also getting frequent bladder infections. If you are having bladder infections more than 3 times in a 6-month period, this could be a sign of Endometriosis. I use a completely natural product for my bladder infections. No more antibiotics!

  1. Bloating in the abdominal area

This is obviously going to be one of those symptoms that could be part of many other conditions, but with Endometriosis it feels like you permanently have this extra weight sitting in your abdominal cavity. You try and go to the toilet to get it out, but it is permanently there! Your abdomen feels swollen and sore. It can be only at certain times of the month, but many women with Endometriosis have this feeling on a permanent basis.

  1. Thyroid Conditions

It appears that many of us with Endometriosis have an underactive thyroid function. This is also largely connected to the liver and hormones. I have written a few articles on the potential connection to thyroid health. You can read about the possible connection to thyroid health in this article.

  1. Frequent Thrush or Candida Symptoms

Do you have a constant issue with thrush or candida? Have you experienced thrush in the past?  You could have underlying candida with endometriosis.

 

These are the 20 associated symptoms I have recognised through my own journey with Endometriosis and which many of my clients experience as well. If there are any symptoms I haven’t mentioned, feel free to share yours in the comments below.

empowered_endometriosis_sisters

I know you can resolve so much of this by looking after your body holistically. Join us by signing up below to find out more…

 

Hugs, Melissa x
Share this post:
Share on pinterest
Share on facebook
Share on twitter
Share on linkedin

This Post Has 376 Comments

  1. Heather

    Thankyou so much for sharing your story with us. I have endometriosis also and I am unable to conceive. It’s a very depressing disease to live with. You feel like you are the only one dealing with such pain and emotion. It helps a lot hearing your story and the story of others to know that I am not alone. Thankyou.

  2. Laura

    Oh my goodness!
    I honestly felt like you were writing about me! I have coped with very similar symptoms over the last three years and it’s really gotten me down. Thank you for writing this. Things seem even clearer now! 🙂

  3. Melissa

    It sounds like the pill isn’t agreeing with you. Try natural contraception instead. It is far healthier and you won’t experience any side-effects.

  4. Melissa

    It sounds to me like you are experiencing some other reason for pain, along with the endo. Look at cutting out gluten and dairy and see if you can ease the pain sweetheart.

  5. Melissa

    So sorry to hear you experienced so much pain. Are you okay now?

  6. Melissa

    I Bee and so sorry you are experiencing this pain. I would explore physical therapy, an osteopath or chiropractor first and then look at doing some exercises to support your body. Sideways movements, where you hold the body up are incredibly good for loosening hip pain. Yoga and Pilates would be incredibly powerful for you.

  7. Melissa

    My heart goes out to you too sweetheart.
    It definitely sounds like your liver is struggling and unfortunately tests only reveal things when they are really bad. I would explore ways of detoxing the liver and eating a very clean diet. Also, make sure you are avoiding gluten-containing foods. Bread, cakes and baked goods would certainly be a potential contributor to some of the symptoms you have described. Try avoiding all of these foods, including pasta and soy sauce, some spices that contain wheat for a month and see if you feel better. I noticed a significant change when I eliminated gluten from my diet. It can be the reason for the hot/cold feeling as it affects your thyroid – which is likely running low – also known as hypothyroidism.
    Eating large amounts of sugars and wheat will also trigger the thrush you have described.
    My recommendations:
    Eat mostly greens, avoid any grains and gluten-containing foods for a few months
    Drink a vegetable juice daily
    Avoid alcohol and painkillers as much as possible
    Take up exercise where you sweat or go for regular sauna’s to encourage sweating

    I know you can get better hun because I used to get many of the symptoms you are describing and managed to get my life back.

    Hugs,

    Melissa

  8. Melissa

    Hi Jillian,

    My heart goes out to you sweetheart. I would explore the idea of food sensitivities and definitely look into whether your body is struggling with toxins. Lead and mercury can be a big factor in heavy toxin responses as you have described. Also, naturally look into what you are eating. Sometimes the body can give us this reaction with foods we are sensitive to or have an allergy towards. I have noticed this with dairy and gluten for myself.
    There is a way forward and please know that your body wants to heal.

    Hugs,

    Melissa

  9. Karina

    I would suggest getting a second opinion for sure.

  10. Karina Foster

    When you see your primary doctor ask for a referral to a gynocologist. They can do a pelvic ultrasound. I saw my primary doctor yesterday and he sent referral and told them to get me in as soon as possible.

    I have bad chest pain. Passing out multiple times a day everyday since November 17th. Until this article I didn’t know what could be wrong. Neither have all the doctors I have seen.

    My legs have been jerking, I call them seizures. Think all this could be due to endometriosis.

    I had an abdominal hysterectomy in December 2011 due to endometriosis. In February of 2011 I had a right ovarian cyst. Had that ovary taken out. Then in 2015 I had my left ovary taken out due to another ovarian cyst. Get checked out. Don’t settle for less than answers.

  11. karina foster

    I have 11 of these symptoms. I saw my primary doctor today. He is sending a referral to a gynocologist STAT. I am in so much pain. It hurts doing nothing.

    I had an abdominal hysterectomy in December 2011. I was recently diagnosed with inflamed bladder. I get frequent UTI’s. Like every 2-3 months it seems. I also have had multiple syncope episodes everyday since November 17,2017. I had lots of tests done and no answers.

    Then I click on this article I saw on Facebook. This explains what I am going through. Is nice to have answers. Thanks so much for writing this and sharing the information with us all.

  12. Jillian

    Hello again…

    My name is Jill, i wrote the last comment. I forgot to add that it is debilitating feeling this way. It’s not only around my period time, either. But it’s become so bad, i haven’t been able to work. I’ve just become so weak, along with the seizures, my body never feels good anymore, or right.

    I need desperately to get back to being me. I’m so afraid that won’t ever happen. I just turned 29 this year, and I’m just afraid it is something else that is even worse than endo.

    And again, my heart goes out to all of you brave, wonderful women managing this disease. Suffering like this every day – it makes you a soldier. Or a cowboy. Whichever you prefer ?

    I just really need to know if this could possibly be Endo…
    I just don’t know if it can make you feel so…almost poisoned.

    It’s kindnof like how you feel when you have a hangover, and you need to get toxins out of your body, ill…but times a MILLION. And nothing, absolutely nothing helps.
    has anyone experienced that, along with their body heating up, head sweating, and followed by chills?

  13. Anonymous

    Greetings ladies,
    I am reaching out to everyone in a great deal of desperation. I have been suffering for the last four years. With a SEVERE feeling of being so ill that i absolutely cannot take it, that comes and goes and varies in severity. It start d four years ago, but has greatly progressed since.

    My lower back pain also began four years ago and i just attributed it to working – lifting bags of flour, being on my feet for 8 hrs a night in a bakery…

    Only the illness got worse, and the pain progressed until about two years ago, it became a stabbing pain in my sides, mostly in my right side. Under my ribs, that spreads around to my back, runs down my side in front and back, and sometimes goes upbetween my shoulder blades.

    It varies in severity – between being stabbing, coming in waves. Or being a very bad aching that leaves me unable to do much of anything at all.

    I’ve also had thrush and ongoing yeast infections, I’m extremely fatigued to the point of wanting to sleep all day, almost impossible to get up bc of how bad i feel.

    My skin has always been blvry clear, but has become full of bumps and marks within the last year. I’ve noticed that my feet and lower legs are always cold, even though my face, hands, and head are almost always hot and sweaty, followed by chills – even in the summer. Winter. Doesn’t make a difference…i can’t regulate my body temp anymore.

    I’ve also began having seizures – mini and grand maul. Whether it’s connected or not i don’t know…

    But I’ve spent the last four years convinced that i am dying of liver disease bc of how violently ill i get. Because of how bad the pain is – and despite the tests they’ve run – cat scans and abdominal ultrasounds – they’ve only found a cyst on my ovary so far.

    The doctors haven’t been taking me seriously. Even though they’ve seen my doubles over in pain, sweating, crying, begging and telling them i cannot live this way anymore!

    I’m afraid for my life, and although i don’t want to have this disease – i would rather have this than liver failure…as I’ve had trouble with opiates in the past as I’ve not known what to do for my pain , so i had self medicated bc no one will help me or take me seriously…and it has been four years now!

    I also was diagnosed with IC at the age of 18.

    I don’t know what to do anymore, do you think it is possible to have endo?

    Please let me know, and please let me know what you would tell your dr bc i am about to see her again…she is just a primary dr, not an gynecologist.

    I forgot to mention that my periods had been regular my whole lift up until about a year ago. They’re never predictable, and they’re always heavy. The cramps have become very painful when they never before were…

    This last period, I’d just found out about the cyst, and i had more pain than I’d ever had – except the last time i had a cyst rupture. Since then I’ve been in so much pain and have been feeling so ill, i just don’t know what to do.

    Please, any advice – i need some desperately.

    I love all of you ladies so much, and i like I knup to all of you. Have so much sympathy for what you’re all going through and my heart goes out to you all.

    I pray we will all find answers.
    Much love to everyone.

    ?
    Please, i need your opinions – could this be endo?

  14. Anita Frank

    hi, I am 41 and have suffered from candida or many years now. I am vey sensitive to the cold. The last year and a half I have experienced some nights sweats leading up to my period. The last few months I have experienced flu like symptoms feeling a little achey, tired, sometimes a sore throat and cough and a general feeling of un wellness. Also some nausea. I have also been treated for an underachieve thyroid since I was 22

  15. Eugenia

    Hi…. I have Endo & my doc want me to get a hysterectomy.I am 40 and so scared

  16. Jamiela

    I went to a herbalist and he told me to change my diet and it helps

  17. Heather A

    Hi I’m 33 years old and was diagnosed with endometriosis last year.I first went to the ER after I had sex and couldn’t move after as the pain on my right side was so horrible.I went to my obgyn who thought it was a cyst and to come back in 6 weeks for a sonogram.I then went back to the ER 3 more times because nothing would prevent or help the severe pain.The ER docts did compare the Sonos w the previous ones and said the cyst was much larger.They contacted my obgyn and got me a sooner appt.I agreed to get surgery to remove it.When my doctor opened me up she said the cyst was gone or very small but found endometriosis tissue build up.She removed the growth.The recovery process was also horrible.I was so sorry but after a few weeks I felt a lot better.That only lasted a few months and I experienced the same zaps like lighting bolts hitting both sides like on my ovaries.I also have extreme amount of pressure down there.I’ve tried everything for the pain, but the only thing that helps is prescription painkillers.I got a 2nd surgery in Feb and my doctor said she found a few little spots.I decided then to get on the depo shot even though I don’t need it for bc as my tubes are tied.I got my 2nd shot a few weeks ago and my period has stopped but not the pain.All I do when I’m not at work is lay on the couch w my heating pad.My doctor will not prescribe anything for my pain due to the opioid epidemic.I need to find a new obgyn bc I have no history of abusing meds and I don’t feel like she cares or listens.The only other option is a med to put you into menopause.I don’t know what to do.I consider suicide because this is no way to live.Before I was diagnosed I had heavy painful periods that lasted 7-8 days at a time.Even though I don’t have a period now I have constant lower back pain and pelvic pain.I feel bad for my bf cuz I’m always in pain so we rarely have sex.I don’t understand how my obgyn cannot prescribe me something to help deal with this throbbing pain and I have a diagnosis.The doctors maybe not all but most do not listen to women’s symptoms or concerns.I probably had Endo for years and just was brushed off.Something has to be done about this.Women in pain should not be treated as drug seekers or druggies.I don’t know how much longer I can live like this…It’s too much.I don’t wish this condition upon anyone.

  18. Kamilla

    I’ve had a hysterectomy a year and three months ago. I’m 34 years old. I was able to conceive after a laporascopy at the age of 29. I had a stage 4 endometriosis. I’ve had horrible periods since day one, but it never even crossed my mind to ask anyone about it. I thought it was just a part of being a woman. Anyway, hysterectomy didn’t take care of it. I only fought a break for about 3 months. I’m pretty much disabled from the pain right now. I don’t have the guts to go for lupron or remove my ovaries. I’m not ready for a menopause. I’m in such confusion. I hope yours is not so bad. Gotta say that every specialist u went to thinks that Endo is back, but the surgeon who did my hysterectomy says it’s not back. I can tell that it is and full force too. I’m so sorry for every one of us. I hope they can find a cure for this sometime soon.

  19. Emma N Sanford

    I haven’t been diagnosed with endometriosis but I HONESTLY think I have it. When I was younger I would have SEVERE lower back pain as in I would cry and not be able to move it hurt so bad. Can you out grow that symptom i took birth control too because of my periods.

  20. Melissa

    It could be a side-effect of the pill sweetheart.

  21. Layla

    Hi I’m a 16 year old female, I have endometriosis. I’m on the pill and I have been bleeding for 19 days straight, bad cramps and very tired and have no energy. What’s wrong with me???

  22. Layla

    Hi I’m 16 year old female, I have endometriosis. I’m on the pill and I have been bleeding for 19 days straight, bad cramps and very tired and have no energy. What’s wrong with me???

  23. Dana Sandoval Vaughan

    Dear Samantha,
    You wrote in Feb and its April now so my hope is you found help already… but if not my suggestion is this – you make an appointment with an OB/GUN who states they are endo knowledgeable and/or does laparoscopic surgery. I’m willing to bet you have endo based on your description of your symptoms but the ONLY way to confirm endo is thru a visual check when they look inside. There are a few other things that could be going on with you but at the very least they should be doing blood work to check things. My first clue was the age at which this nightmare started for you and the severity you describe and the ER visits. Its likely you are experiencing cysts on your ovaries those months that get trapped by or made worse by your endo. I went thru getting terribly violently ill every month as a teen but as I ovulated so docs were just mystified. I mean they would shoot me with tranquilizers and it would not stop the vomiting and pain. In college, the lowest dose of estrogen based birth control low estren saved me but I like you am allergic to 90% of all hormone related solutions because my endo is estrogen sensitive meaning it is so severe it carries a high amount of estrogen in it and super produces estrogen so adding hormones to it is like pouring gas on a fire. There are breast cancer strains that work similarly to this so think of it like those. I have a very very rare very severe case of endo though, the onset was in my teens and not only went unchecked into my 30’s but we made the horrible mistake if doing infertility treatments on me month after month after month after my lap surgery to remove the worst of my endo. I took estrogen shots and syranel and all sorts of hormones activators and things that only made it worse because they knew it would be hard for me to get pregnant. I am now 46 and never did get pregnant and still suffer terribly from my endo because it penetrated my uterus walls from the outside inward and I have edema or swelling in both legs and numbness in my left foot. But, I am endo’s worst case.We can learn so much from me! Its so important you go and get diagnosed. It will help you decide how to procede so that you can conceive – most endo women do go on to conceive! And there are lots of good things to help pain and suffering. Some are actual pain relief meds taken in a controlled and responsible way and I am here to tell you that they worlds leading endo surgeons will tell you first hand, our disease can be the most painful thing on earth meriting good and many times strong pain control. But its so important to know if your case necesitates that and balance that with all the great other tools available. In addition to real pain meds taken in a very controlled and monitored enviroment and they havent needed to be increased in ten years… I use a TENS unit electro stimunlation on my nerve areas, yoga, heat pad, essential oils, massage, diet control like removal of sugar best I can, accupuncture… there is an endless list of things that can help relieve you in partnership with meds that will give you your life back, if your case merits that. Many women after a debulking lapro surgery never pain control meds. Your ob can also help you try to conceive at the best possible time in the most effective way to take advantage of your age and control of your endo if they find you have it. IVF immediately has been shown to be most effective for endo women who didnt conceive naturally in a reasonable amount of time. I did 10 inseminations instead and all that time my endo wad flaring. Samantha, your case is unlikely to be anything like mine, I published this to be beneficial to other women as well, so they get help as soon as possible. I will be excited to see what the author of this page offers about hormonal balance because endo patients tend to have a lot of estrogen and is why we are always feeling so cold, so bringing us back to balance could be an important and effective remedy. Its probably why in my twenties a very very lose does bc pill kept my endo at bay. Good luck with everything and trust me you will be feeling better as soon as you find an effective ob/gyn and pain doctor to help you. – Be well, Dana

  24. Kristina Mcgaw

    I do get all these symptoms but doctors tell its fibroid or it’s a cyst I feel extremely bloated every day even after I ate or drink sleep a lot pee a lot back pain breast pain really uncomfortable unexpected period just confuse any one can tell me what’s happening

  25. Sarah dodds

    I have been having these problems that seem to be getting worse every time, it started last year about october… I went to doctors today with no joy was told to come back if it got worse just like they did in october

  26. Anonymous

    Ive recently read an article says a hystetectomy doesnt work. Only the end of menopause.

  27. Samantha

    Mine do not listen either. 12 years of this and still no answers. I have yet to be taken seriously and I fear for my fertility. My husband and I have been trying to conceive for a few years.

  28. Samantha

    unfortunately ultrasounds do not often catch endometriosis. You may have to have exploratory surgery to diagnose it. I feel that is what is needed for myself. I cannot get my doctors to listen to me. I hope you get an answer soon, this is an awful thing to have to live with. Statistically, most women live with it for 7-10 years or more before being diagnosed. Many doctors are also highly unaware of its severity and what to look for (as well as when and how) don’t give up, stay active in being your own health advocate.

  29. Samantha

    I have been dealing with these symptoms for years. Since I was 14, I’m now 25. I have excruciating cramps, diarrhea for the first 2-3 days, severe back pain, and sciatica down my left leg. My hips always hurt. My cycles are pretty irregular. I have been to several different doctors and had multiple ultrasounds with no answers. All any of them do is tell me I’ll grow out of, or it’s normal to have some pain. They do not listen when I explain that I cannot take birth control, nor do I want to, as my husband and I are TTC. I’m allergic to high doses of estrogen in birth control and break out in hives as well as feel like I have the flu. One Dr finally suggested that I have endo, but then I moved. I feel like not a single person is actively listening to my symptoms, nor do they take me seriously. I have been to the ER 3 times because of the amount of pain I endure. I’m trying so hard to be an advocate for my own health, but the Drs won’t listen. I feel increasingly alone and depressed with each cycle. I don’t have, nor can I afford, health insurance. One Dr told me I can take up to 800 mg of Ibuprofen at a time, as if I haven’t already been using OTC pain medications. I’ve tried everything. Tylenol, Motrin, Aleve, Advil, Pamprin, Midol… They have tried to prescribe me Tramadol, but it knocks me out for 16 hours straight. I have told them this, yet they keep trying to give it to me. I tell them that I need something that will let me function throughout the day, not keep me passed out. I cannot work through it, and I cannot afford a drs note every month. Idk what to do anymore. I feel so helpless.

  30. Lucy

    Thank you so much for this informative article and sharing your personal experience. I have most of the symptoms you mentioned in varying degrees. My last period knocked me for six and I couldn’t move for two days. I also have a diagnosed thyroid condition. I constantly feel like I’m getting sick and even though I’m on the right meds for my thyroid condition I still can’t get out of bed in the mornings. My boyfriend says he has to check my pulse to make sure I’m still conscious before he leaves for work. I also follow the autoimmune paleo diet for my thyroid condition so am doing all I can to be healthy and feel good. I don’t seem to be making any progress and can relate it all back to my periods and ovulation. In the past when I’ve seen the dr the symptoms have been lumped in with my thyroid condition. Recently I have been to see a dr again about it and she asked me what my symptoms were and when I told her she said “classic period pains I’m afraid” as if I have hadn’t been having a period for the past 22 years. She has blamed my copper coil and wants me to go on the Mirena. I have a scan booked for the end of Feb. My fear is that it won’t show anything because it’s not the right tool for diagnosis and my drs also did not diagnose my thyroid problem. I had to go private in the end for diagnosis and appropriate medication. I have no trust in the NHS for this sort of thing. It may be my copper coil but it doesn’t explain a lot of the symptoms. I hope I get some answers soon! ?

  31. Erin

    Thanks for this. I have a lot of these symptoms and have for years. I’m 27 and going for a bunch of ultrasounds soon.
    I went to have one about 6 months ago at my local GUM clinic as I thought my copper IUD might be out of place.
    The ultrasound showed a 4cm cyst which the doctor said was quite normal for someone my age and didn’t seem concerned. When I mentioned my bowel problems he didn’t see a connection.
    After bringing this up with my GP (who I’m seeing for anxiety/depression related issues), she has requested some scans to see what is going on.
    I really hope they can diagnose Endo or something: I’ve had mood problems as long as I remember but the severe pain and digestive issues didn’t become obvious until around 6+ years ago (after coming off combined pill most likely).
    I have severe IBS related problems which have improved a bit since I cut out dairy.
    Constant tiredness, hot/cold flashes, infrequent severe disabling pain, lower back pain, cold extremeties (feet turning blue since I hit puberty), headaches and mood swings throughout the luteal phase of my cycle.
    Anyway, thankyou. Anyone who thinks they have these issues bring it up with your GP and don’t stop badgering until they do something!

  32. Brandi

    How do u get a doctor to listen .every month I suffer and I’m getting worse as the months go by.

  33. Melissa

    Yes, unfortunately, endometriosis can still develop even after a hysterectomy.

  34. angela lacorte

    I have most of these symptoms but I had a hysterectomy years ago. Still have my ovaries. I’m 59. Can I still get endometriosis. Which I was told I cannot

  35. sarah hall

    Good day, my name is sarah and I have experienced all the things for years now, with no reprieve. I was wondering if anyone has every experienced pnes or pyschogeneic seizures with endo? I have gotten so much worse since thse have started. Thank you

  36. Melissa

    Hugs sweetheart. Know that you can find answers 🙂

  37. Andrea Hinojosa

    I have all those symptoms when I start my breast are sore I can’t walk my whole body hurts my lower back and upper back I have really bad pain on my lower abdomen and it shoots down to my legs making it impossible to walk. And vomiting . And it lasts the whole time I’m on my cycle.

  38. Cassie

    Actually, bladder infections aren’t associated with endometriosis. However, there is a common link between endo and interstitial cystitis; about 50% of women with Endo have IC as well.

  39. Diana

    I learned so much sounds like me I no how you feel can’t take it any more. I well make a Dr.s appointment wish me luck see many Dr. in my time and never found anything HELP.

  40. Melissa

    It could possibly be a factor for some women. I would recommend getting yourself checked out by a doctor though.